Moonrise: One Family, Genetic Identity, and Muscular Dystrophy
(eBook)

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Published
St. Martin's Publishing Group, 2014.
Status
Available Online

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Format
eBook
Language
English
ISBN
9781466868830

Citations

APA Citation, 7th Edition (style guide)

Penny Wolfson., & Penny Wolfson|AUTHOR. (2014). Moonrise: One Family, Genetic Identity, and Muscular Dystrophy . St. Martin's Publishing Group.

Chicago / Turabian - Author Date Citation, 17th Edition (style guide)

Penny Wolfson and Penny Wolfson|AUTHOR. 2014. Moonrise: One Family, Genetic Identity, and Muscular Dystrophy. St. Martin's Publishing Group.

Chicago / Turabian - Humanities (Notes and Bibliography) Citation, 17th Edition (style guide)

Penny Wolfson and Penny Wolfson|AUTHOR. Moonrise: One Family, Genetic Identity, and Muscular Dystrophy St. Martin's Publishing Group, 2014.

MLA Citation, 9th Edition (style guide)

Penny Wolfson, and Penny Wolfson|AUTHOR. Moonrise: One Family, Genetic Identity, and Muscular Dystrophy St. Martin's Publishing Group, 2014.

Note! Citations contain only title, author, edition, publisher, and year published. Citations should be used as a guideline and should be double checked for accuracy. Citation formats are based on standards as of August 2021.

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Grouped Work ID44c64f5e-424e-1d29-0cc2-64725c159b64-eng
Full titlemoonrise one family genetic identity and muscular dystrophy
Authorwolfson penny
Grouping Categorybook
Last Update2024-06-11 02:48:54AM
Last Indexed2024-06-22 03:32:38AM

Book Cover Information

Image SourcecontentCafe
First LoadedJun 16, 2022
Last UsedJun 19, 2024

Hoopla Extract Information

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    [synopsis] => Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life.

As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.
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